So about a half-hour ago I (Jonny) ran 3.1 miles outside in 29 minutes. That's pretty slow for me, but there was a reason: I did the whole thing breathing only through a McDonalds straw. There is a reason behind this too, I'm not just crazy despite what more than a few people have told me. When people talk to me about my job or my workouts they always ask "Does your wife do all that stuff with you?". When I tell them that she can't right now because of her CF, I explain to them that for her to exercise it'd be like someone with normal lungs trying to workout while breathing only through a straw. I use this analogy a lot, but until today I had never actually felt what it's like to run with that limited of breathing.
I wore nose plugs to make sure that I only breathed through my mouth. I also brought along two straws to alternate between since they fill up with spit (haha, ok even I think I sound crazy right now). It started out rough trying to find a breathing rhythm, since it actually took force and concentration to exhale and inhale without doing it too fast. After convincing my body that there was no chance of quitting, I zoned out (probably also from oxygen depravation) and kept running. A few times on some hills I really wanted to take it out, but I never did. As soon as I finished the 5k, a crouched down on the grass, threw off the nose plugs and the straw, and said a prayer for Rachel to receive her new lungs. After personally feeling what complications with CF can be like, I want so badly for Rachel to be able to breath easily and someday run with me. And with God's help I know that's possible.
Just the other day I was talking to one of my clients and she was asking me about the transplant. She asked if Rachel would be able to have children of her own. I explained to her that although the doctors don't think it's a great idea, we don't rule out the possibility. She replied "Hey, with God nothing is impossible." I agreed with her, then she looked at me and while laughing said, "You don't know the meaning of the word 'can't' anyway, do you!" She's right...
I don't.
We don't.
And God doesn't either.
Saturday, January 22, 2011
Saturday, January 15, 2011
Wedding, Emergency Room, and Roasted Chicken
We made it! The wedding was amazing and Mary and Peter are heading home from their honeymoon today. Everything was beautiful. Every moment was special. And I cried like a baby all day long. I really thought I would do better…but no…I was a mess. It was so much fun! I had to take it easy though… I wish I could have done more to help but these lungs just wouldn’t have it. I am so thankful that I was there at all...I really didn’t think I was going to be able to be there. I thought for sure that I would be in the hospital recovering so something like that. But God listened to all of our prayers! Thanks God! And thank you for praying!
The rest of the week was… well… interesting. On Monday, (our 6 month anniversary and my daddy’s birthday!) I had a really bad pain in my lung. Mom came over right away and we called my nurses at Hopkins. I could hardly talk on the phone…I’ve never felt pain like that. My nurse said to go to the ER right away because it sounded like a might have a collapsed lung. We went over and had an xray done, but it didn’t show anything. I had taken advil and that started to really help. So after 4 hours we went home. Tuesday I woke up with a really bad pain in my shoulder but my lung was fine. I started to think that I might be having a flair up of some type of CF related arthritis…I’ve had times before where my whole body will ache and I feel like an old lady for a few days. It normally goes away and then I’m fine. Thursday we went down to Hopkins just to make sure everything was alright. My doctor said that although CF related arthritis is uncommon, it does exist. I seem to get all the strange side effects and symptoms from everything, so it doesn’t really surprise me. My lung function was down, but not too much. There wasn’t really anything to change or to do so he said to just hang in there and see what the next few days would bring. Thankfully I am feeling much better and my aches are gone! Still coughing and not feeling so great, but you know, it is ok. If nothing else, I had a great week with my momma! She always takes care of me when I’m sick. She even cleaned our apartment for me yesterday. I just love her.
And now for the funny story of the week! After spending the day on the couch and taking plenty of advil, I was feeling ok on Tuesday evening. I had been wanting to try to roast a chicken for several weeks and we bought one last Sunday. So I decided to give it a whirl. I found a recipe for Herb Roasted Chicken (which looked amazing) and I pulled out all the spices and made the rub. Opened the chicken, put it in the roasting pan, rubbed it with the rub, and stuck it in the oven. IT SMELLED SUPER IF I DO SAY SO MYSELF!!! After 2 hours it was finished and Jonathan and I could hardly wait! We pulled it out and Jonathan began to cut it up. He was getting so frustrated because there was almost no white meat! He kept saying that he was cutting into ribs. Finally we realized that the chicken was upide down…yes, I had actually arranged, seasoned, and roasted the chicken the wrong direction. It was hilarious. I wasn’t even angry! We laughed so hard! In my defense it really did look like it was sitting in the pan breasts up. Jonathan didn’t notice either! In the end, it was still so delicious and I can now say that I have roasted a chicken. And that is my story of Upside-Down Chicken.
- Rachel
The rest of the week was… well… interesting. On Monday, (our 6 month anniversary and my daddy’s birthday!) I had a really bad pain in my lung. Mom came over right away and we called my nurses at Hopkins. I could hardly talk on the phone…I’ve never felt pain like that. My nurse said to go to the ER right away because it sounded like a might have a collapsed lung. We went over and had an xray done, but it didn’t show anything. I had taken advil and that started to really help. So after 4 hours we went home. Tuesday I woke up with a really bad pain in my shoulder but my lung was fine. I started to think that I might be having a flair up of some type of CF related arthritis…I’ve had times before where my whole body will ache and I feel like an old lady for a few days. It normally goes away and then I’m fine. Thursday we went down to Hopkins just to make sure everything was alright. My doctor said that although CF related arthritis is uncommon, it does exist. I seem to get all the strange side effects and symptoms from everything, so it doesn’t really surprise me. My lung function was down, but not too much. There wasn’t really anything to change or to do so he said to just hang in there and see what the next few days would bring. Thankfully I am feeling much better and my aches are gone! Still coughing and not feeling so great, but you know, it is ok. If nothing else, I had a great week with my momma! She always takes care of me when I’m sick. She even cleaned our apartment for me yesterday. I just love her.
And now for the funny story of the week! After spending the day on the couch and taking plenty of advil, I was feeling ok on Tuesday evening. I had been wanting to try to roast a chicken for several weeks and we bought one last Sunday. So I decided to give it a whirl. I found a recipe for Herb Roasted Chicken (which looked amazing) and I pulled out all the spices and made the rub. Opened the chicken, put it in the roasting pan, rubbed it with the rub, and stuck it in the oven. IT SMELLED SUPER IF I DO SAY SO MYSELF!!! After 2 hours it was finished and Jonathan and I could hardly wait! We pulled it out and Jonathan began to cut it up. He was getting so frustrated because there was almost no white meat! He kept saying that he was cutting into ribs. Finally we realized that the chicken was upide down…yes, I had actually arranged, seasoned, and roasted the chicken the wrong direction. It was hilarious. I wasn’t even angry! We laughed so hard! In my defense it really did look like it was sitting in the pan breasts up. Jonathan didn’t notice either! In the end, it was still so delicious and I can now say that I have roasted a chicken. And that is my story of Upside-Down Chicken.
- Rachel
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| Doesn't it look like it is the right direction?! |
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| Sauteed Green Beans and Barley as sides : ) |
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| Me and my Upside-Down Chicken |
Tuesday, December 28, 2010
It's been a while...
I just want to say that we have a great God. I just love him. I can’t believe how he knows everything we need, from what we need to eat to how much money we need to what encouragement we need. And he has been so faithful to supply us so greatly with these and so much more. Jonathan and I received a letter from a friend of a friend yesterday. I just stood in the kitchen and cried as Jonathan read it to me. Along with the letter were gifts from her and several of her friends and family members. This girl said that she had been following our blog and praying for us. She said that she had been strengthened by our story. That is what I pray for. For so many years my sister and I have lived with CF and although most people know about it, they can’t see what this is really like. John 9 has always been such a meaningful passage to my sister and I…the disciples were questioning why a man was born blind. They ask if it was the man or his parent’s short comings that had lead to it. Jesus said that it wasn’t either of their faults, but that it had happened that way “so that the work of God might be displayed in his life. As long as it is day, we must do the work of him who sent me.” That is what I pray for. That makes all of this worth it. If God is working in other people because of this transplant, if this is the life that God has designed for me to have, than that is what I want. So, Carrie, thank you for the letter. God is so great : )
Here is a little update on my health:
Things have been pretty calm around here. I finished up 2 weeks of IVs right before Christmas. I had been feeling really tight and getting short of breath just by walking around our apartment. Normally I would go up on my steroids, but right now that isn’t an option. Because steroids really limit healing abilities, the transplant team won’t let me take any more. So, IVs were the only option. My follow up visit was kind of confusing…ok, it was very confusing. My lung function went up even more, but I am still so tight. Dr. Boyle said we are not going to pay attention to the numbers any more. They just don’t match up with my body. So, I’m still plugging along, trying to stay out of the cold, and doing everything I can to stay healthy.
Here is a little update on us:
We had an amazing Christmas! We are now through the 3rd of 4 dates that we prayed I would not have the transplant on…Thanksgiving, the Stair Climb, Christmas, and Mary’s wedding. One more to go, but I’m just trusting God to take care of it…I know he will : ) We went to a very special Christmas Eve service up in PA, then went home and put out all of the presents! We both had a hard time sleeping…we were so excited for our first Christmas morning together! We woke up, ate a lovely breakfast of chipped beef gravy and toast (YUM!!!), Mountain Dew for me (part of my normal morning routine!) and coffee for Jonathan. After therapy we opened presents! We got ready and headed out to the Slick’s for a family open-house, and then to my parents' for the evening. I really don’t think I’ve had a better Christmas…it was perfect. We started laughing so hard with my family that I fell off the couch and all of us were crying! Needless to say, that is a pretty good workout and my sister and I both ended up in huge coughing fits! That is how you know when something is really funny : D Now we are getting back into our “normal” routine. Only 11 days till the wedding!!!
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| Our Christmas tree! |
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| Jonathan making breakfast...Yummy! |
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| Sam, Gabby, Bethany and Jonathan getting ready for the open-house. |
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| Mom with a very sleepy little Blizzie : ) |
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| Mary and her future husband Peter <3 |
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| Dad and Blizzie after a long Christmas day! |
Monday, December 6, 2010
I Got 2nd!
This past Saturday was the stair climbing race that I've been getting ready for for over 3 months now. The event was put on by the Western PA CFF chapter and was held in the Gulf Tower in Pittsburgh, PA. Rachel and I drove up Friday evening and stopped in New Stanton, PA to spend the night. The next morning she did her therapy vest and inhaled medicines, then we left. We were talking about how awesome it is going to be when we get to go on vacation and not have to pack the vest and nebulizer with us, or do therapy first thing in the morning and last thing at night.
We got to Pittsburgh with no problems and headed into the Gulf Tower. We were greeted by the directors of the CFF chapter and warned about 3 other CF patients that were there, so we could all keep our space and prevent things getting passed between them. I had no idea how sort of popular our story was with the group until everyone kept coming up and saying "Oh you must be Jonny and Rachel!" haha. The "Lungs for Rachel Slick" shirt I was wearing probably helped.
After registering, I decided to warm up by walking up the staircase. Along the way, I met a nurse named Peggy on the 19th floor. We got to talking and she told me that she had met Rachel downstairs and then wrote a $50 donation check to the CFF in Rach's honor! It was pretty awesome. The support I received for doing this fundraiser was incredible. My friends (both old and new) and family donated almost $1500 to the Cystic Fibrosis Foundation and the event brought in over $10,000!
The actual race was 38 floors up (722 stairs) in a pretty dusty stairwell. I did the course in 5:03, just 2 seconds behind the winner! I was honestly a little disappointed after training so hard for this, but I couldn't have lost to a more formidable racer. He is a hardcore mountain biker who's used to steep hill climbs and grueling courses...better yet, he has cystic fibrosis. I am amazed at this guy's athleticism and strength in overcoming CF in this way. I had to stop twice during the course to catch my breath, and could hear myself wheezing as I approached the finish. It was probably close to the furthest I've ever pushed myself physically for that period of time. The winner and I averaged around 7.9 seconds per floor and finished over 45 seconds before the next racers.
After the race there was a "survivors party"/awards ceremony. After talking with a few of the people we met, Rachel and I packed up and headed out on our 3 1/2 hour drive home to Hagerstown. The entire race and ride home I was thinking about Rachel. I was struggling to breathe for 5 measly minutes, not 23 years. I admire her strength so much, and I know she makes me stronger.
Thank you to everyone at the Western PA CFF chapter for putting the race on. I can't wait to do it next year...in under 5 minutes. Thanks also to everyone who donated! You all were a great encouragement to me and Rachel both. And thanks to Rachel. She didn't mind me coming home drenched after training in that hotel stairwell, she put up with my incessant talk about stair climbing, she supported me the entire way, and she always calls me her winner in everything. I love you, babe.
- Jonny
We got to Pittsburgh with no problems and headed into the Gulf Tower. We were greeted by the directors of the CFF chapter and warned about 3 other CF patients that were there, so we could all keep our space and prevent things getting passed between them. I had no idea how sort of popular our story was with the group until everyone kept coming up and saying "Oh you must be Jonny and Rachel!" haha. The "Lungs for Rachel Slick" shirt I was wearing probably helped.
After registering, I decided to warm up by walking up the staircase. Along the way, I met a nurse named Peggy on the 19th floor. We got to talking and she told me that she had met Rachel downstairs and then wrote a $50 donation check to the CFF in Rach's honor! It was pretty awesome. The support I received for doing this fundraiser was incredible. My friends (both old and new) and family donated almost $1500 to the Cystic Fibrosis Foundation and the event brought in over $10,000!
The actual race was 38 floors up (722 stairs) in a pretty dusty stairwell. I did the course in 5:03, just 2 seconds behind the winner! I was honestly a little disappointed after training so hard for this, but I couldn't have lost to a more formidable racer. He is a hardcore mountain biker who's used to steep hill climbs and grueling courses...better yet, he has cystic fibrosis. I am amazed at this guy's athleticism and strength in overcoming CF in this way. I had to stop twice during the course to catch my breath, and could hear myself wheezing as I approached the finish. It was probably close to the furthest I've ever pushed myself physically for that period of time. The winner and I averaged around 7.9 seconds per floor and finished over 45 seconds before the next racers.
After the race there was a "survivors party"/awards ceremony. After talking with a few of the people we met, Rachel and I packed up and headed out on our 3 1/2 hour drive home to Hagerstown. The entire race and ride home I was thinking about Rachel. I was struggling to breathe for 5 measly minutes, not 23 years. I admire her strength so much, and I know she makes me stronger.
Thank you to everyone at the Western PA CFF chapter for putting the race on. I can't wait to do it next year...in under 5 minutes. Thanks also to everyone who donated! You all were a great encouragement to me and Rachel both. And thanks to Rachel. She didn't mind me coming home drenched after training in that hotel stairwell, she put up with my incessant talk about stair climbing, she supported me the entire way, and she always calls me her winner in everything. I love you, babe.
- Jonny
Saturday, November 27, 2010
Thankful
The Spaghetti Dinner last Saturday was incredible…that is the best way to describe it. Everyone who was involved worked really hard and put everything together. It was amazing. The food was so good, the auction had some really fun things in it, my ballet students did a surprise dance for me, and when I walked in the door everyone was wearing “Lungs for Rachel Slick” shirts that had been designed and screen printed by friends. Jonathan’s band played for the first time since the spring. More than 300 people came out…and the financial support that was raised was just unbelievable. I wish I could say how much that meant to see everyone and to know all the hard work and sacrifice that went into making that dinner happen…I just can’t find the words.
Sunday was Mary’s surprise bridal shower! We thought for sure that she had figured it out…but when she came in the door we realize that she hadn’t! Peter was able to fly in 2 days early to be there as another surprise, so that was really fun! Our dear friend Dana opened up her home and planned all the food and took care of so many shower things. It was a huge help and the shower turned out really well!
On Tuesday we headed to Hopkins again for a 2 hour long meeting with a lady from the transplant team to talk about post-transplant care. Wow. I’ve been in more enjoyable, happy meetings before. It sounds like things are going to be pretty rough during that first year. We all came out of the meeting and were just kind of quiet for a while. Too much to think about. It isn’t really fair to sit a family down and tell them in the span of 2 hours all the hundreds of things that are going to change over the course of the year. Our plan is to take things one day at a time. Today’s our job is to keep going with “normal” life and wait. When the day comes that the job is to drive to Hopkins and get a transplant, that is what we will do. And in the days after that when the job is to take care of my new lungs, that is what we will do. I can do all things (even get a lung transplant) through Christ who strengthens me.
Thanksgiving was a wonderful day! Jonathan, his sister Bethany, and my Dad all ran in the 5K Turkey Trot at the community college. Jonathan beat his personal record and I am SO proud of him!!! We had lunch at the Slick’s house then went to my family’s house for dinner. So much delicious food! After dinner we came home and set up our Christmas tree! I won’t be able to have live plants in the house after the transplant so we decided to go a head and buy a fake tree this year. I thought I’d be disappointed with a fake one, but it really looks lovely! I put up all our other Christmas decorations (Jonathan lets me decorate however I want to and I love it!!!) and we watched the Rockettes Christmas thing! Our first married thanksgiving was better than I could have asked for! What an incredible day.
Here are some pictures for ya...
- Rachel
Sunday was Mary’s surprise bridal shower! We thought for sure that she had figured it out…but when she came in the door we realize that she hadn’t! Peter was able to fly in 2 days early to be there as another surprise, so that was really fun! Our dear friend Dana opened up her home and planned all the food and took care of so many shower things. It was a huge help and the shower turned out really well!
On Tuesday we headed to Hopkins again for a 2 hour long meeting with a lady from the transplant team to talk about post-transplant care. Wow. I’ve been in more enjoyable, happy meetings before. It sounds like things are going to be pretty rough during that first year. We all came out of the meeting and were just kind of quiet for a while. Too much to think about. It isn’t really fair to sit a family down and tell them in the span of 2 hours all the hundreds of things that are going to change over the course of the year. Our plan is to take things one day at a time. Today’s our job is to keep going with “normal” life and wait. When the day comes that the job is to drive to Hopkins and get a transplant, that is what we will do. And in the days after that when the job is to take care of my new lungs, that is what we will do. I can do all things (even get a lung transplant) through Christ who strengthens me.
Thanksgiving was a wonderful day! Jonathan, his sister Bethany, and my Dad all ran in the 5K Turkey Trot at the community college. Jonathan beat his personal record and I am SO proud of him!!! We had lunch at the Slick’s house then went to my family’s house for dinner. So much delicious food! After dinner we came home and set up our Christmas tree! I won’t be able to have live plants in the house after the transplant so we decided to go a head and buy a fake tree this year. I thought I’d be disappointed with a fake one, but it really looks lovely! I put up all our other Christmas decorations (Jonathan lets me decorate however I want to and I love it!!!) and we watched the Rockettes Christmas thing! Our first married thanksgiving was better than I could have asked for! What an incredible day.
Here are some pictures for ya...
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| Roma Renegade playing at the Spaghetti Dinner! |
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| Our tree...fresh out of the box! |
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| After we did some unfolding... |
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| Our lovely tree! |
- Rachel
Friday, November 19, 2010
Exciting Week
The Spaghetti Dinner is tomorrow night! I can hardly believe all that everyone has done to get it together. I keep hearing pieces of who has donated to the silent auction, who is making home-made sauce, how many people have asked to help…it is just amazing. And then I think about all the people who are coming…my girls from college, old high school friends, my family, church friends, even people I don’t know. One of the most important factors in recovering from a transplant is having a good support system…wow, I think we’ve got that one covered! Thank you all in advance for coming out tomorrow night and for supporting us…and thank you to everyone who has supported us and can’t make it to the dinner. You are all in our prayers and we are so thankful for you.
Here is a link to the Spaghetti Dinner Facebook page if you are interested in coming!
http://www.facebook.com/#!/event.php?eid=133444790037911&index=1
Well, we went back to Hopkins on Tuesday for a check up. I am so thankful I was able to go a whole month without needing to go back because of sickness! My lung function was down just a tiny bit. I’ve been struggling more with tightness and getting out of breath but Dr. Boyle said there really isn’t much we can do about it right now. I can’t go up on my steroids because I am on the highest level allowed for getting a transplant. Antibiotics won’t help because I don’t seem to have an infection. So I’m just doing my best to breath. It is making me really excited for new lungs. When I make the bed and get out of breath, or put away dishes and have to rest, I am reminded that there is an end in sight…next November I won’t be feeling like this. My goal is to run the 5K Turkey Trot at HCC with my Dad and Jonathan next Thanksgiving. It makes me cry to think about. I’ve watched Jonathan run over the finish line several times, and I’ve watched Dad and Jonathan run over the finish line, and next year I get to do it with them!!!
Our next appointment is on Tuesday. We have a 2 hour long meeting to learn about what kind of care I will need after the transplant. Should be interesting…prayers are always appreciated!
And now for some non-transplant stuff! I am SO excited for Thanksgiving and Christmas and the wedding!!! I have lots of Christmas decoration which I bought on black Friday last year, we bought a fake Christmas tree (because I can’t have a real one after the transplant), and I’ve already started Christmas shopping (which is really early for me!). I am so excited to have our first Christmas as a married couple! I promise that I am more excited than all the kids I know : ) Jonathan said we could put the tree up on Thanksgiving so I’ll be sure to post some pictures!
- Rachel
Here is Dad and Jonathan at a CF Foundation benefit 5K last year...
Here is a link to the Spaghetti Dinner Facebook page if you are interested in coming!
http://www.facebook.com/#!/event.php?eid=133444790037911&index=1
Well, we went back to Hopkins on Tuesday for a check up. I am so thankful I was able to go a whole month without needing to go back because of sickness! My lung function was down just a tiny bit. I’ve been struggling more with tightness and getting out of breath but Dr. Boyle said there really isn’t much we can do about it right now. I can’t go up on my steroids because I am on the highest level allowed for getting a transplant. Antibiotics won’t help because I don’t seem to have an infection. So I’m just doing my best to breath. It is making me really excited for new lungs. When I make the bed and get out of breath, or put away dishes and have to rest, I am reminded that there is an end in sight…next November I won’t be feeling like this. My goal is to run the 5K Turkey Trot at HCC with my Dad and Jonathan next Thanksgiving. It makes me cry to think about. I’ve watched Jonathan run over the finish line several times, and I’ve watched Dad and Jonathan run over the finish line, and next year I get to do it with them!!!
Our next appointment is on Tuesday. We have a 2 hour long meeting to learn about what kind of care I will need after the transplant. Should be interesting…prayers are always appreciated!
And now for some non-transplant stuff! I am SO excited for Thanksgiving and Christmas and the wedding!!! I have lots of Christmas decoration which I bought on black Friday last year, we bought a fake Christmas tree (because I can’t have a real one after the transplant), and I’ve already started Christmas shopping (which is really early for me!). I am so excited to have our first Christmas as a married couple! I promise that I am more excited than all the kids I know : ) Jonathan said we could put the tree up on Thanksgiving so I’ll be sure to post some pictures!
- Rachel
Here is Dad and Jonathan at a CF Foundation benefit 5K last year...
Friday, November 12, 2010
410
As I expected, being put on the transplant list has shaken things up a little for us. I told Jonathan the other day that I was getting comfortable again. I had prepared myself as much as possible for being listed and then we were just waiting for it to happen. I was able to get back into my regular work, cleaning, artwork, helping with Mary’s wedding…those types of normal things. All it will take is that one call…and all those things, my “normal” life will be on hold. God is taking me to yet another level of appreciation for normal things…every time I do the dishes I soak it in and enjoy it…sounds silly, I know. But even this state of normalness is going to be over. And I don’t know when. I’m sorry to sound ridiculous and I really don’t mean to sound sorry for myself. Please forgive me if I do…just sharing what I’ve been feeling the past few days. I am also very excited. Jonathan and I are making a list of all the things we want to do when I am better…the very first one is RUN!!!
After the incident in the middle of the night with Jonathan’s phone, I really tried to settle myself and not freak out every time I hear a phone! Well, we had another scare! On Wednesday night we were driving over to my parent’s house around 7. My phone started ringing and when I pulled it out of my pocket I saw it was a 410 number…and 410 is the Baltimore area code. I told Jonathan what it said and answered the phone. After a few seconds I realized that it was a recorded message reminding me of my upcoming appointments on Tuesday. I told Jonathan what it was and I just burst into tears. I was so angry. It is not fair to call a girl on the transplant list from an unknown Baltimore number at 7 at night to give her a stupid reminder!!! Sheesh!!! I was so upset that Jonathan pulled over and we just sat there for a minute while I tried to start breathing again. My goodness. What an adventure this is starting out to be!
- Rachel
After the incident in the middle of the night with Jonathan’s phone, I really tried to settle myself and not freak out every time I hear a phone! Well, we had another scare! On Wednesday night we were driving over to my parent’s house around 7. My phone started ringing and when I pulled it out of my pocket I saw it was a 410 number…and 410 is the Baltimore area code. I told Jonathan what it said and answered the phone. After a few seconds I realized that it was a recorded message reminding me of my upcoming appointments on Tuesday. I told Jonathan what it was and I just burst into tears. I was so angry. It is not fair to call a girl on the transplant list from an unknown Baltimore number at 7 at night to give her a stupid reminder!!! Sheesh!!! I was so upset that Jonathan pulled over and we just sat there for a minute while I tried to start breathing again. My goodness. What an adventure this is starting out to be!
- Rachel
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